Let's Walk and Roll For a cure and awareness of PH It was another HUGE Success ~ see picture pages.
WE DONE GOOD!
And you can still make donations --
ask Merle how
These are interesting......
Welcome to Merle's World
Tidbits about the CAPHS - previous meeting - info and things that I enjoy and hope you will too. OHPA.PHER@GMAIL.COM
Too often we take for granted the things we
should be giving thanks for.
Obstacles are those frightful things you see when you take your eye off your goal.
A M E R I C A ~
Land of the free - Home of the brave
Independence Day celebrates the birthday of the United States of America. Founded on July 4th 1776 with the signing of the Declaration of Independenceand each year as Americans we continute to celebrate the RED, WHITE and BLUE in many different ways: picnics, bbq's, baseball and fireworks.
Each year on September 11th, we were asked to display an American flag on this anniversary of our country's worst tragedy. We do this in honor of those who lost their lives on 9/11, and for their families, friends and loved ones who continue to endure the pain, and for those who today are fighting at home and abroad to preserve our cherished freedoms.
In the days, weeks and months following 9/11, our country was bathed in American flags; as citizens mourned the incredible losses and stood shoulder-to-shoulder against terrorism. Our patriotism has always pulled us through some tough times. Our American flag is the fabric or back bone of this great country and together we can prevail. We should remember to do this every year.
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
Merle Reeseman Support Group Leader
FYI - anything that is underscored is a link to a topic, a theme, or a web site
Laughing is good exercise. It's like jogging on the inside.
What I have been doing in my spare time *;*
# # # # # #
Not everything that happens is because of the PAH so don't think that you are necessarily doing worse just because you are having a bad day; even normal people have bad days. Also, try to think of yourself as healthy -- approach life with that attitude; it can't hurt and it may help. If you are being symptomatic make sure something isn't going on in your life to cause this: stress, tension, have you gained weight, are you retaining added fluid. Being symptomatic does not always mean you need an increase or change in you medication. Talk with your doctor to rule these things out.
Newly diagnosed or just having a bad day and you need to talk with someone who understands.
Call the PHA Support Line, a patient to patient conversation. Someone who understands what you are going through. 1 800 748-7274
PHA's Outstanding PH Citizen
This is awarded to a patient who exemplifies dedication to the PH community through any combination of the following: raising awareness; advocating for PH patients; participating in fundraising efforts; service to PHA; and, helping to provide the public with a voice and face of the PH community.
2010 Winner: Merle Reeseman
As a Helpline/Support Line Volunteer, PH Mentor, a major advocate, and leader of three PHA support groups (Mercer, PA; Cleveland Area, OH; and Pittsburgh, PA) Merle has exhibited unyielding dedication to the PH community. In support of the 2010 Path to a Cure Mt. Kilimanjaro climb, Merle helped organize a Unity Walk with her Pittsburgh, PA Support Group earlier this year. In February, she helped raise awareness of pulmonary hypertension and heart transplantation at and in a ballet: Heart: Function vs. Emotion at the Byham Theater in Pittsburgh. This year the Cleveland Area Group had their 4th Annual Walk and Roll in September to raise funds for research and awareness for Pulmonary Hypertension. Merle is a tireless advocate and lobbyist for the PH community, and has reached out to government leaders from a local to a national level and she doesn’t care which state it involves. If a pher needs help, she is there for them. This past May Merle was asked to speak at a luncheon group the day before the Ohio primary. With that presentation to the UAW, she was able to mail over 200 signatures to each Ohio Senator about S 2803 and also letters to 5 Congresspeople about HR 1030. She is passionate about being a face for the PH community, and has appeared on television and radio in the Pittsburgh and Youngstown-area on many occasions, as well as featured in numerous Pittsburgh, Sharon, Cleveland and Akron-area newspapers. Her boundless energy, enthusiasm and caring spirit make her a true asset to the PH community.
This award was presented at the 9th International Pulmonary Hypertension Conference and Scientific Sessions: “Riding the Wave” June 25th – 27th 2010 in Garden Grove, CA
PHA’s International Pulmonary Hypertension Conference and Scientific Sessions is the largest meeting of PH patients from infants to octogenarians, families, caregivers allied health professionals and the world’s leading PH physicians and researchers in the PH field.
Also in attendance with exhibits, were representatives from the pharmaceutical industries that make the various medications used to treat this disease. The International PH Conference provides education, networking opportunities and, above all hope for a cure.
There were over 1500 in attendance at this conference.
Although Merle was unable to attend the conference, arrangements were made for a member of the PHA Board of Directors to bring it home and re-present it to her at her support group meetings. It now sits proudly on her living room mantel.