What is PHAbout UsMeeting InfoWelcome to Merle's WorldMore About UsNews & ViewsDiet, Nutrition & ExerciseHelpful Hints etc
More Helpful HintsSpecial Events 4 CAPHSPics of Walk and RollMore picturesCaregiversThings that make you Previous MeetingsMeetings Previous Years

  Our bimonthly meetings are on the second Saturday of the odd months unless otherwise noted.   We start at 11:30  a.m.. come hungry and willing to learn about this disease, other issues that would concern us and tips on how to cope or what you find to be helpful in your life. We do not meet during the winter months.
      Merle Reeseman  ~ Support Group  
                           * * * * * * * * * * * * * * * * 
Map of OHIO   <-- Click and have fun with this site.                   you can have a road map or birdseye view
2007 Meetings  January 14, 2007 ~ Weighing the Benefits of Exercise & PH  March 11, 2007     ~  Diet & Nutrition*May 6th, 2007      ~   Genetics & PH - What's the Connection   *July 14, 2007   ~  Intimacy Issues - Yes SEX is a 3 letter   Word  September 9, 2007 ~ Caregiving - The Task at Hand  September 15, 2007 ~ LET'S WALK & ROLL -- A huge success  Decmeber 9, 2007 ~  Ins and Outs of Lung Transplantation
                                            * & * & * & * &*&
In 2007, for Awareness month, the Cleveland Clinic Foundation invited us to their Summit '07 -- dates November 16 and 17, Update on Management and New Discoveries. To see what you missed ---->  click here.It was a great event, we learned a lot, shared more and a good time was had by all.
Thank you Cleveland Clinic for hosting this event not only for clinicians but for the phamily members who were able to attend.  We had patients from Ohio; also from FL, MD, MI, MN, NJ, NY, PA, WI, WVA.   I hope I didn't miss anyone.  It really was a great event. 
2009 Meetings
March 14, 2009    Who to Treat and With What*May 2, 2009 *       PEER Mentor ~ Also Breathing                                                                        TechniquesJuly 11, 2009         How to deal with PH and summer monthsSeptermber 12,      Trains, Planes, Automobile and Boats                                            How to travel having PH  
September 19          Let's Walk & RollNovember 20 & 21      AWARENESS MONTH ~ CCF Summit*December 5, 2009   PH and Blood Clots

6th Annual Cleveland Clinic Summit November 20th and 21st  2009(Saturday specifically for PHers)Translating Discoveries into Patient Care  
Two-day summit will cover the basic understanding of the pathobiology of PH, advances in clinical pulmonary hypertension evaluation and updates on therapy options. 
2008 Meetings
*March 8  to 3-22-08         STRESS MANAGEMENTMay 10         PH Associated w Left Heart DiseaseJuly 12        The PHuture: Scientific discoveries that may                        change how we diagnose, treat and monitor PHSeptember 13    Pulmonary Hypertension - Improving Life in
                               the  Present and Hope for the FutureSeptember 20, 2008   Let's Walk and Roll ~ another successNovember 8     Cleveland Clinic - Summit Meeting          A Practical Approach to Diagnosis and Management    *December 6        Winter & PH Exercise -                                                                        staying  in the groove 
                                           & % & % & % & % &For Awareness month the Cleveland Clinic once again held a Summit meeting and graciously included any and all PH patients to attend.  It was their 5th Annual Pulmonary Hypertension Symposium and the theme for 2008 was A practical Approach to  Diagnosis and Management, held on November 8th.  The morning sessions were geared for clincians and the afternoon session were specifically for PH patients.  We of course were invited to attend both.  There was no charge for PH patients and their guests and lunch was also included.                                                
2010 Meetings

March 13 - Getting the Most Out of Your Food         
May 15, ~  Acceptance and Coping with PAH
June 13 ~   Congential Heart Disease & PH
September 11 ~  Lung Tx: Why, When, How    *September 18, ~  4th Annual Walk & Roll 
            *November Awareness Month ~ 
November 19th ~ Cleveland Clinic Summit      
*December 4, 2010 ~ What do our Doctors expect

7th Annual (Held 11-19-10)Pulmonary Hypertension Summit^ to find out more - click ^Practical Issues and Updates in Management  
2011 Meetings       Meeting time 1 p.m unless otherwise notedMarch 12th    Genetics and PH -- what's the connection
May 14th        Asthma <-> PH and Asthma either or both
*July*Sun10th 1:30p Caring for the Caregiver
September 10th     5TH Annual Walk & Roll   
“Pulmonary Hypertension: Past, Present, and PHuture!!
September 24th at 2:30 << Meeting Cancelled
November 6th > 8th  CCF 8th Annual SUMMIT
December 3rd      Exercise - Staying in the Groove

2012 Meetings

March 10     Art Therapy
May 5          Caring Voice Coalition
July 21 11 a.m.           note date and time
August 4             6th Annual Walk & Roll 
September 22   Chronic Illness and Anger
November          CCF Summit will be in April
December 1      Tests: What do those Terms Mean

Meeting Dates 2014

March 8      Updates for PH, Nice, France
May 3 PH -  Understanding the Basics
July 12        Traveling with a Chronic Illness
August 16 our 8th Annual Walk & Roll
             New location see above header
September 13  PAH Emergency Preparedness
November 5     10th CCF PH Symposium
December 6  Surgical Management of PH 

Meeting Dates 2013

March 9         Insights on Health Ins Options
May 4              PAHTCH - new trial
July 13            7th Annual Walk & Roll -start saving $
September 14 On Going Trials
Novermber 9    rescheduled to December
November 15 & 16  Cleveland Clinic Summit
  (16th for patients)
December 14    PH vs PAH - What's the Difference?
2016Cleveland Area PH Support Group Schedule

Unless otherwise noted we meet at 1 p.m. at the
Twinsburg Library – Meeting Room 1
10050 Ravenna Rd., Twinsburg, OH 44087

Cleveland Clinic Twinsburg Family Health and Surgery Center – Community Room, lower level - 8701 Darrow Rd., Twinsburg, OH 44087 

March 18 – 19                 CCF Summit
May 14 (meeting will start at 1:30)                                                                     Twinsburg Library
July 16 (*note date)       Twinsburg Library
September 10                Twinsburg Library
October 22 @ CC-T       10th Annual Walk & Roll
November 5                   *Cleveland Clinic Twinsburg
                                        we will meet a noon ^

Date - 2015

March 21,  
May 16,  
July 18,  
August 15  

Sept 19,  
November 14 


CC Twinsburg
UH Twinsburg
CC Twinsburg
9th Annual WALK & ROLL -- 
fund raiser ALL  at CCF Twinsburg
CC Twinsburg
UH -- see above right - regular meeting


March 17
May 19
July 14
August 11   WALK & ROLL
September 11
November 10
Family Health and Surgery Center -- Community Room, elevator to lower level -- Turn right, walk down hallway to double doors marked Community Room,

Please note date, time and location -- the doors lock at noon and it is a long walk from ER entrance to get back to the main entrance

Speaker to be announced.

Thank you ACCREDO for providing our lunch.