If there is a particular topic or issue you would like discussed or presented, let me know ~ write to me at: firstname.lastname@example.org
Our meetings are typically on the second Saturday of the odd months of the year but due to holidays etc. some of the dates may be changed. We do not meet during the winter months. As you can see, the dates have been set for this year ~ the topics have also been set but they will be kept a secret until after the previous meeting.
The dates are listed below:
*denotes a change of day, time or location
Schedule for 2017
CLEVELAND AREA PH SUPPORT GROUP
Our bimonthly meetings are on the second Saturday of the odd months unless otherwise noted. We start at 1 p.m.. come hungry and willing to learn about this disease, other issues that would concern us and tips on how to cope or what you find to be helpful in your life. We do not meet during the winter months.
Merle Reeseman ~ Support Group
* * * * * * * * * * * * * * * *
Map of OHIO <-- Click and have fun with this site. you can have a road map or birdseye view
2007 Meetings January 14, 2007 ~ Weighing the Benefits of Exercise & PH March 11, 2007 ~ Diet & Nutrition*May 6th, 2007 ~ Genetics & PH - What's the Connection *July 14, 2007 ~ Intimacy Issues - Yes SEX is a 3 letter Word September 9, 2007 ~ Caregiving - The Task at Hand September 15, 2007 ~ LET'S WALK & ROLL -- A huge success Decmeber 9, 2007 ~ Ins and Outs of Lung Transplantation
* & * & * & * &*&
In 2007, for Awareness month, the Cleveland Clinic Foundation invited us to their Summit '07 -- dates November 16 and 17, Update on Management and New Discoveries. To see what you missed ----> click here.It was a great event, we learned a lot, shared more and a good time was had by all.
Thank you Cleveland Clinic for hosting this event not only for clinicians but for the phamily members who were able to attend. We had patients from Ohio; also from FL, MD, MI, MN, NJ, NY, PA, WI, WVA. I hope I didn't miss anyone. It really was a great event.
March 14, 2009 Who to Treat and With What*May 2, 2009 * PEER Mentor ~ Also Breathing TechniquesJuly 11, 2009 How to deal with PH and summer monthsSeptermber 12, Trains, Planes, Automobile and Boats How to travel having PH
September 19 Let's Walk & RollNovember 20 & 21 AWARENESS MONTH ~ CCF Summit*December 5, 2009 PH and Blood Clots
Two-day summit will cover the basic understanding of the pathobiology of PH, advances in clinical pulmonary hypertension evaluation and updates on therapy options.
*March 8 to 3-22-08 STRESS MANAGEMENTMay 10 PH Associated w Left Heart DiseaseJuly 12 The PHuture: Scientific discoveries that may change how we diagnose, treat and monitor PHSeptember 13 Pulmonary Hypertension - Improving Life in
the Present and Hope for the FutureSeptember 20, 2008 Let's Walk and Roll ~ another successNovember 8 Cleveland Clinic - Summit Meeting A Practical Approach to Diagnosis and Management *December 6 Winter & PH Exercise - staying in the groove
& % & % & % & % &For Awareness month the Cleveland Clinic once again held a Summit meeting and graciously included any and all PH patients to attend. It was their 5th Annual Pulmonary Hypertension Symposium and the theme for 2008 was A practical Approach to Diagnosis and Management, held on November 8th. The morning sessions were geared for clincians and the afternoon session were specifically for PH patients. We of course were invited to attend both. There was no charge for PH patients and their guests and lunch was also included.
March 13 - Getting the Most Out of Your Food
May 15, ~ Acceptance and Coping with PAH
June 13 ~ Congential Heart Disease & PH
September 11 ~ Lung Tx: Why, When, How *September 18, ~ 4th Annual Walk & Roll
*November Awareness Month ~
November 19th ~ Cleveland Clinic Summit
*December 4, 2010 ~ What do our Doctors expect
2011 Meetings Meeting time 1 p.m unless otherwise notedMarch 12th Genetics and PH -- what's the connection
May 14th Asthma <-> PH and Asthma either or both
*July*Sun10th 1:30p Caring for the Caregiver
September 10th 5TH Annual Walk & Roll
“Pulmonary Hypertension: Past, Present, and PHuture!!”
September 24th at 2:30 << Meeting Cancelled
December 3rd Exercise - Staying in the Groove
5th and Final
GOLF OUTING - SCRAMBLE
WILL BE ON
JUNE 24, 2017
The Mahoning Country Club
A special event to honor Nicole's memory
It was a success!!!!
March 10 Art Therapy
May 5 Caring Voice Coalition
July 21 11 a.m. note date and time
August 4 6th Annual Walk & Roll
September 22 Chronic Illness and Anger
November CCF Summit will be in April
December 1 Tests: What do those Terms Mean
Meeting Dates 2014
March 8 Updates for PH, Nice, France
May 3 PH - Understanding the Basics
July 12 Traveling with a Chronic Illness
August 16 our 8th Annual Walk & Roll
New location see above header
September 13 PAH Emergency Preparedness
November 5 10th CCF PH Symposium
December 6 Surgical Management of PH
CLEVELAND AREA PH SUPPORT GROUP
CC Twinsburg Family Health and Surgery Center –
8701 Darrow Rd., Twinsburg, OH 44087
November 4, 2017
Cleveland Clinic – Twinsburg
Family Health and Surgery Center – Community Room, elevator to lower level – turn right, walk down hallway to double doors marked Community Room
Please note date, time and location – the doors lock at noon and it is a long walk from the ER entrance to get back to the main entrance.
Many times we bring a list of questions or concerns for our doctors – now we will learn what they want and need to know from us.
Join us when Robert Schilz, D.O., Ph.D., Associate Professor of Medicine, Case Western Reserve University ~ Medical Director of Lung Transplantation and Pulmonary Vascular Disease ~ University Hospitals of Cleveland, and member of the Scientific Leadership Council for PHA; will do a presentation on:
What Doctors Need to Know –
Including Goals of Care and Treatment
After each presentation we will have an informal chat and snack time to share our stories or some other aspects of living with PH and how we deal with these issues. If you can, bring a helpful hint on what you do to make your PH life a little easier or bring a question or concern.
Please RSVP to Merle by November 1, 2016 either by phone or email
724-458-5573 or email@example.com
Thank you Gilead Science for providing our lunch for the day.
Meeting Dates 2013
March 9 Insights on Health Ins Options
May 4 PAHTCH - new trial
July 13 7th Annual Walk & Roll -start saving $
September 14 On Going Trials
Novermber 9 rescheduled to December
November 15 & 16 Cleveland Clinic Summit
(16th for patients)
December 14 PH vs PAH - What's the Difference?
2016Cleveland Area PH Support Group Schedule
Unless otherwise noted we meet at 1 p.m. at the
Twinsburg Library – Meeting Room 1
10050 Ravenna Rd., Twinsburg, OH 44087
Cleveland Clinic Twinsburg Family Health and Surgery Center – Community Room, lower level - 8701 Darrow Rd., Twinsburg, OH 44087
March 18 – 19 CCF Summit
May 14 (meeting will start at 1:30) Twinsburg Library
July 16 (*note date) Twinsburg Library
September 10 Twinsburg Library
October 22 @ CC-T 10th Annual Walk & Roll
November 5 *Cleveland Clinic Twinsburg
we will meet a noon ^
Date - 2015
9th Annual WALK & ROLL --
fund raiser ALL at CCF Twinsburg
UH -- see above right - regular meeting